Back in 2014 I wrote about how I seemed to cry a lot in the hallway of a Drs. office when G was really sick https://lesbianspaghetti.wordpress.com/2014/03/27/my-big-fat-life-hallways/ As you may remember, my son G was diagnosed with Anomalous Left Heart Coronary in the summer of 2013 when he went in a for an echo completely unrelated... Continue Reading →
MY Big Fat Life – Tolerance, Acceptance, Pray Away The Gay, and Facebook
Recently I was unfriended on Facebook. Before I start to sound like a whiny teenager (soory teens, but you really do get freaked out about this stuff) I have to say this was someone I considreed a realy close friend at one time. Since unfriending on social media is the new "I don't want to... Continue Reading →
My Big Fat Life – Jesus Take The Wheel (but let me press the gas pedal)
G had another seizure the weekend before last. It was one of those grand-mal seizures, and scared the crap out of me. This makes three now. The second seizure he had was something called a "partial", and it was after that the Dr ordered an EEG. The day before he had this last one he... Continue Reading →
My Big Fat Life – Throwback Thursday (365 days later)
A year ago today I stood in the hallway at OHSU right outside the door of the ultrasound room, and cried as I listened to a cardiologist tell me that G needed to have life saving open heart surgery. These were the same halls I walked when I was visiting G in the NICU after... Continue Reading →
I used to get really offended when kids would stare at G when we are out in public. You see, because of the prednisone doses, G has been dealing with a suppressed immune system. Because of this, when we go out I make him wear medical masks to reduce his chances of walking into a... Continue Reading →
My Big Fat Life – Tomorrow Is When?
A couple of days ago, G saw the Rheumatologist. As you know, he has been tapering the prednisone every Monday while taking the colchicine. The plan is to continue the taper, with him going off the prednisone completely by June 11th. He will stay on the colchicine after he finishes the prednisone, with hopes that... Continue Reading →
My Big Fat Life – Bear
I wanted to take a moment and explain the red bear that often appears in the photos of G. As many already know, G had an identical twin bother. When I was 20 weeks pregnant it was discovered through ultrasound that I had twins. During that ultrasound, they also told me that the twin was... Continue Reading →
My Big Fat Life – G & Day One
G took his first colchicine pill this morning. It's a little purple pill. It's weird to think how much hinges on that little thing producing huge results. It reminds me of something G shouted out once, while trying to wrestle with his older (and much bigger) brother, Ben. Keep in mind this was before I... Continue Reading →
My Big Fat Life – Mariah Carey Just Verbally Hugged Me
This is my third attempt to write an entry. Each time I sit down to say something I just stop cold. I don't know why it feels so vulnerable to write tonight, but it does. G saw the cardiologist recently, and he says the repair is perfect. I guess it takes 6 months to be... Continue Reading →
My Big Fat Life – Snow & Sleep
It's really quiet outside tonight. It's been snowing a good part of the day, and it's perfectly still out. I glanced out the window just a few moments ago, and the ground is perfect. I can see the places people have walked, and all of the places that remain untouched. It's really the only time... Continue Reading →
You must be logged in to post a comment.