My Big Fat Life – Last Pill

June 11th was supposed to be the last day of prednisone, but apparently I counted the days wrong, and it was this morning. This day has been a dreaded coming. When I was putting his pills in his medication dispenser a few days a go, I started tearing up. The forced reality that this is...

G started a new taper to his prednisone yesterday (the Dr. had him do it a day late, since we typically do it on a Monday) and he is holding on this dose until he sees the Dr. again on the 12th. Other than some random pains that haven't amounted to anything, he seems to...

My Big Fat Life – Bear

I wanted to take a moment and explain the red bear that often appears in the photos of G. As many already know, G had an identical twin bother. When I was 20 weeks pregnant it was discovered through ultrasound that I had twins. During that ultrasound, they also told me that the twin was...

My Big Fat Life – G & Day One

G took his first colchicine pill this morning. It's a little purple pill. It's weird to think how much hinges on that little thing producing huge results. It reminds me of something G shouted out once, while trying to wrestle with his older (and much bigger) brother, Ben. Keep in mind this was before I...

My Big Fat Life – G’s Treatment Plan

I finally got a call today. As you know, the cardiologist brought the rheumatologist onboard, so that he could manage Gl's medications to help with the PPS (Postpericardiotonomy Sydrome) flares. Since PPS is really the same as Peircarditis, only caused by surgery, the rheumatologist manages those medications with more knowledge than the cardiologist. The rheumatologist...

My Big Fat LIfe -The Perks of Being Me

I've been waiting for doctors to talk to each other, and decide what the game plan is, since last week. I have called every day, and at times I have even spoke to the doctors themselves, who promise me they will speak to each other, and then the next time we talk.. nothing. Today I spoke to one...

My Big Fat Life – G’s Heart

The Cardiologist spoke with me the day before yesterday, and after speaking with the surgeon, they  have finally decided to do a CT Scan or an MRI on G to take a closer look at things and make sure they aren't missing anything. I am both happy they are finally doing this, and terrified they...

My Big Fat Life – Hallways

Well... I write this as tears spill from my eyes. Gl is sick again. We made it almost 3 weeks this time before the pain started. I took him to the cardiologist the day before yesterday, and an echo confirmed the fluid has started to build up around his heart again. I can't begin to...

My Big Fat Life – I Learned.

Yesterday l had another echo to check things out, since it was his two week mark of being off of the prednisone. If we can make it a few more weeks without a flare, then his chances of having made it over the bump, may have finally arrived. I'm still holding my breath a bit,...

My Big Fat Life – Mariah Carey Just Verbally Hugged Me

This is my third attempt to write an entry. Each time I sit down to say something I just stop cold. I don't know why it feels so vulnerable to write tonight, but it does. G saw the cardiologist recently, and he says the repair is perfect. I guess it takes 6 months to be...